I’ve had enough!

31F. I’m not officially diagnosed with BFS by a neurologist but I’ve had body wide muscle twitching since January 2024. No muscle weakness or associated symptoms (except neuropathic in feet and legs, where a CT found lots of degenerative disc changes).

I have had an EMG on one leg which was clean. I didn’t get a review from the neurologist, just the EMG at request of my doctor I think mostly for peace of mind.

I want to move on with my life, and when my fasciculations don’t seem ‘as bad’ as usual I can put it at the back of my mind somewhat but it’s gotten worse in my hands and thighs and it distracts me and draws my attention ALL THE TIME and even though I know it’s irrational I’m still so fearful. I have twitching what seems like 24/7.

I just want to know if people have found ANYTHING that’s helped lessen their twitches or actually made them go away? If I could make them leave me alone for just ONE day maybe that would be enough to be content with them afterward.

Thanks for listening to the rant and any advice is appreciated! 🤞🏽